APMAR ONLUS, National Association of People with Rheumatological and Rare Diseases, was founded to protect rheumatic patients. Its mission is to improve the quality of care to improve the quality of life.
The request was to create a new tool that would support and guide each individual, improving awarness of one’s own illness.
After months of research by interviewing patients with a different background, we were able to identify four main categories to work on based on their personal experience dealing with a rare disease.
How can we guide a person that just received a diagnosis of a rare chronic disease?
How can we deliver a support system within the community?
What type of tools are needed?
Where can a people enjoy their freetime?
Alessio discovered that he was suffering from scleroderma at the age of 25 after chasing different doctors and different diagnosis. Through his story and experiences we had an insight on the weaknesses and strengths of a typical journey towards treatment.
By interviewing patients with a different background we were able to identify the critical points to work on.
As part of the orientation group, we decided to work on three main features of the app.
- How to avoide misleading information about my diagnosis?
- How can we better communicate with others about our deseases?
- What can I do and where should I go to receive treatment?
Milan Luiss Hub
Each group worked on designing and prototyping a part of the app using templates and color schemes provided by Opendot. On site there was a rheumatologist and a therapist helping each group.