The challenge

APMAR ONLUS, National Association of People with Rheumatological and Rare Diseases, was founded to protect rheumatic patients. Its mission is to improve the quality of care to improve the quality of life.

The request was to create a new tool that would support and guide each individual, improving awarness of one’s own illness.

The approach

Apmar in collabortion with Opendot created a series of workshops where patients and designers were called to gather information on how to improve awareness of one’s own illnes.

Insight

After months of research by interviewing patients with a different background, we were able to identify four main categories to work on based on their personal experience dealing with a rare disease.

Orientation

How can we guide a person that just received a diagnosis of a rare chronic disease?

Support

How can we deliver a support system within the community?

Selfcare

What type of tools are needed?

Free time

Where can a people enjoy their freetime?

Alessio

Bari Italy

Alessio discovered that he was suffering from scleroderma at the age of 25 after chasing different doctors and different diagnosis. Through his story and experiences we had an insight on the weaknesses and strengths of a typical journey towards treatment.

By interviewing patients with a different background we were able to identify the critical points to work on.

Outcome

As part of the orientation group, we decided to work on three main features of the app.

  • How to avoide misleading information about my diagnosis?
  • How can we better communicate with others about our deseases?
  • What can I do and where should I go to receive treatment?
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months research
collaboration between patients and Apmar association
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hours workshop
at Luiss Hub in the center of Milan
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ideas
App layout and content

DESIGN SPRINT

Milan Luiss Hub

#reumalab

Each group worked on designing and prototyping a part of the app using templates and color schemes provided by Opendot. On site there was a rheumatologist and a therapist helping each group.

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